August Newsletter - Fibromyalgia Magazine

Fibromyalgia magazine's monthly newsletter is out now. Its full of informative articles and interesting pieces for people trying their condition. Click on the link for the full list and here are some examples: 

Airing Pain Episode 62

The new episode of the Airing Pain podcast focuses independent living. Looking at help for those with chronic pain to live independently; the Lothian Centre for Inclusive Living (LCIL)  run by disabled people for disabled people; and Paul from the Thistle Foundation speaks about how their exercise and lifestyle classes bring people ‘out of the darkness’ of social isolation and pain.

July Newsletter - Fibromyalgia Magazine

This month's newsletter covering research and informative articles is now available. There are some interesting pieces for people trying to understand this difficult and confusing condition. Some highlights: 

Disability Benefits Survey

There are some survey's being undertaken by the Disability Benefits Consortium at the moment about benefits and disability. So far, responses have been poor, and these surveys might be used to justify decisions on benefits made by the governments Select Committee, so it's important that people with chronic condition make their view heard.

The first looks at PIP assessments.
And the second is a much wider 'Big Benefits Survey'

The deadline is the 3rd of August.

Care Pathways Case Studies

The British Pain Society's Pain Patient Pathways has been designed to provide a roadmap for GPs to guide their treatment of patients suffering from chronic pain conditions including fibromyalgia. These chart out the different steps of investigation, referral and follow up that your GP should take you through. They are looking to produce a booklet including case studies of patients experiences with GPs, diagnosis and treatment. 

You can see the map for fibromyalgia and if your treatment has been along similar lines FMAUK would like to hear from you. The case studies have a limit of 450 words and FMAUK are happy to help with the actual writing, contact them at pam.stewart@fmauk.org.

Gartnaval Hospital to become Scotland's Chronic Pain Centre of Excellence

The Scottish Government has today announced that Gartnavel Hospital in Glasgow has been selected as the location for a new national Centre of Excellence for chronic pain services. The national service, which is expected to open in January 2015, will deliver residential courses for people who experience chronic pain and carers on how to cope with the effects of chronic pain, and how to manage their condition.  

Airing Pain Episode 59

The new episode of the Airing Pain podcast focuses on Young Carers. Lost childhood, financial burden, emotional turmoil and guilt – these are some of the challenges facing young people who care for people in pain on top of the caring itself. They’re often left feeling invisible, going unrecognised and unsupported for years. The hours care they provide freely saves the Scottish Government £1.4 billion a year, but often leaves young people struggling to stay in education and financially insecure.

UK Fibromyalgia Magazine June Newsletter

This month's round up of research and information is out now. Great for those trying to understand more about the condition or keep up with different therapies effectiveness. Some highlights: 

Physiotherapy and Fibromyalgia

Ros Teweleit at the University of Nottingham is surveying physiotherapists who tread patients with fibromyalgia. The overall purpose is to better understand the training and development needs of UK physiotherapists regarding their work with fibromyalgia sufferers. 

If you are seeing a physiotherapsit at the moment ask them to email ntxrt4@nottingham.ac.uk to participate in an online survey.

Chronic Pain and Deprivation

'Airing Pain' the fortnightly podcast produced by Pain Concern is doing an episode on deprivation and hardship and its relationship with chronic pain. They are looking to interview anyone with fibromyalgia who have felt that hardship or financial difficulties were contributing or affected by their condition. They are looking to talk with volunteers on the 24th/25th of June. If you would be interested contact the production team at production@painconcern.org.uk.

The latest episode of Airing Pain is available here.

UK Fibromyalgia Research Newsletter for May

This month's round up of research and information is out now. Great for those trying to understand more about the condition or keep up with different therapies effectiveness. Some highlights: 

May 12th Awareness Day

May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases, such as Fibromyalgia, Chronic Fatigue and ME. To raise awareness a group are asking people to light up their houses with green, blue and purple, and then submit photos to their facebook page.

Airing Pain - Series 4 Begins

The first episode Airing Pain in the new series of Airing Pain is released Tuesday, 22nd of April. The show is produced and presented by Sony Award-winning BBC broadcaster Paul Evans, who says he has discovered knowledge with a ‘life-changing’ impact for his own chronic pain while working on the show. Paul’s experiences are shared by many others, with 80% of listeners surveyed saying they find the radio programmes helpful and 90% saying they would recommend them to others.

Save the Centre of Integrative Care!

The NHS Centre of Integrative Care (located in Gartnavel General Hospital Complex) is staffed by fully conventionally trained multidisciplinary team of staff who then specialise in a wide range of holistic & complementary approaches to care, and is the safest way to deliver holistic care to patients with complex needs. Access to this award winning hospital is currently under threat. 

The Lanarkshire Health Board are performing a consultation (closing 30th of April). For details of how you can help please read this document. You can take the survey, sign a petition or contact your MSP, or contact the Health Board.

Pain Concern

Airing Pain Newsletters

30/03/13 - Nursing Beyond Drugs

23/03/14 - Busting some myths about shingles and post-herpetic neuralgia, and the dos and don’ts of managing migraines.

18/03/14 - Empowering patients from GP's surgery to Pain Management Programme.

09/03/14 - Learning to manage endometriosis and how support groups can help.

25/02/14 - The state of pain services in England and Wales: the National Pain Audit’s findings revealed.


Indepenent Living for Long-Term Conditions Survey

The European Commission are asking anybody who is living with illnesses or conditions that last many years, and the carers of people living with illnesses to participate in a survey. It is investigating services in the home (like mobile phones, the internet, or personal health monitors) which communicate with the doctor, nurse or other care professional, and whether they could help enhance independent living and care. The views of patients and carers have been often overlooked in this subject area. This survey is your opportunity to make your voice heard!

White Cat Herbal Newsletter

The Spring newsletter from White Cat Herbal is available. There's a Spring Massage offer with 20% off and 3 for 2 on Essential Oils, along with details of herb foraging walks and Spring cleansing course.

Petition for fairer prescription charges in England

The British Heart Foundation is running a petition calling on the government to make prescription charges fairer. Research has shown that some people are having to choose between food and essential medication with serious consequences for their health and lives.

Commonly Misdiagnosed Illness Infographic

Irwin Mitchell have prepared a infographic that illustrate 9 illnesses with the symptoms, tests and the diseases that they are commonly misdiagnosed as. The diseases are Parkinsons, Hypothyroidism, Fibromyalgia, Normal Pressure Hydrocephalus, Multiple Sclerosis, Coeliac Disease, Chronic Fatigue Syndrome, Lupus and Aortic Dissection.

Consultation report on the Provision of Specialist Residential Chronic Pain Services in Scotland

In 2013 the Scottish Government help a consultation on Residential Chronic Pain Services. The results and analysis are available.